Posts Tagged ‘social care’

MEPs back Green call for EU-wide Carers’ Leave law

9 July 2013

*MEPs BACK GREEN CALL FOR EU-WIDE CARERS LEAVE LAW*

EURO-MPs have voted for a raft of measures proposed by London’s Green MEP Jean Lambert to  prevent care for vulnerable groups falling victim to government cuts – including a proposal for a new EU law granting ‘informal carers’ time off
work.

The European Parliament voted by a clear majority today to adopt Ms Lambert’s report – ‘Impact of the Crisis on Access to Care for  Vulnerable Groups’, originally drafted for the Employment and Social  Affairs Committee, of which Ms Lambert is a member.

The  report, which will now be considered by the European Commission as ‘official’
European Parliament policy, sending a clear message to all EU governments that austerity measures and cuts should be evaluated to ensure they do not prevent the most vulnerable from being able to access healthcare, care services, and basic living support.

It calls for (more…)

Home care hub – What can we do to improve care in the home?

4 July 2013

The Guardian’s Social Care Network is partnering with the Department of Health to launch a new project that aims tackle the problems of poor care, low wages and neglect in the homecare sector. Dubbed the “homecare innovation challenge”, the project aims to crowdsource ideas to improve the way the system works.We’re inviting industry leaders, senior local government officials and frontline staff to share their ideas on how the commissioning and provision of homecare services can be improved.

Service users and family members are also being encouraged to contribute their views.

 

 

‘We have to ensure that care and support is built around the person – what they need, how they can best be cared for, what they want,’ says Norman Lamb.

We currently have a system that at its worst can reward and promote poor care, encourage low wages and allow neglect to flourish. While we know that homecare, for the most part, is carried out to a good standard – it still leaves far too many cases of poor and unacceptable levels of care in the home.
One of the most common complaints I come across is where care is carried out by the clock. Carers will come to the house and have a time slot of around 15 minutes to get everything done and be off to the next appointment. But 15 minutes may not be enough to do what is needed. So appointments are rushed through – trying to get everything done – in or out of bed; getting washed; trying to bolt down food or take medication. It is no wonder that these visits can be stressful and unpleasant.

 

read in full here

 

Share your ideas for solving the problems of poor homecare

The Social Care Network is teaming up with the Department of Health to launch a project to find ways to improve the system – and we want to hear from managers, commissioners, frontline staff, service users and carers

 

Your suggestions can be added here

 

 

 

 

.

 

 

Live discussion with the Guardian: the care bill

26 June 2013

copied from the Guardian

Join our expert panel on Thursday 27 June between noon and 2pm to discuss whether the government’s proposed legislation goes far enough to reform the social care system.

The care  bill 2013-14 is a major piece of legislation  that will overhaul the social care system. It  is aimed at replacing existing law with a new, modern legal framework.

But does it go far enough in reforming the system, or are more radical changes needed? Writing for the Guardian Social Care Network, Paul Burstow, the former care and support minister who drafted the 2012 care and support white paper  that preceded publication of the bill, said: “While the bill has been widely praised, there remain missed opportunities.”

In our online discussion, we will be asking: what is missing from the care bill? Which areas need strengthening? Does it say enough about carers’ rights, the threshold of eligibility to social care services and the role of local authorities in providing preventive services  for people with care and support needs? Does it go far enough in supporting older people with their care costs? And should the bill have included a legal right to advocacy?

Join us from 12 noon till 2pm on Thursday 27 June when we will be discussing these issues. If you have a question you’d like to ask the panel, you can email it to socialcare@guardian.co.uk. You can also tweet us your questions at @GdnSocialCare.

The panel so far includes

• Emily Holzhausen, director of policy and public affairs, Carers UK

• James Lloyd, director of the Strategic Society Centre

Richard Hawkes, chair of the Care and Support Alliance

• Bill Morgan, former special adviser to former health secretary Andrew Lansley

Ros Altmann, a pensions and economics policy expert

• Jonathan Senker, chief executive of VoiceAbility, a member of the Voluntary Organisations Disability Group

• Sue Bott, disabled activist and former chair of Think Local Act Personal

• John Woods, assistant director for policy and strategy, Surrey county council

• Jane Young, disability consultant and campaigner

URGENT – CARERS DEBATE, contact your MP

18 June 2013

URGENT - CARERS DEBATE

Following Carers Week, a debate on carers will take place in the House of Commons on Thursday 20th June

Full details can be found here  and you will be able to watch it LIVE via this link

It is vital you contact your MP , ask them to attend – and raise any/all issues that you are concerned about. Time is of the essence, so it may be worth phoning their office and following up with an email outlining your worries.

Questions can be asked on benefits, juggling work and care, social care, support from the NHS and all the other policy areas which affect carers.

Please share this with family, friends, contacts. The more MPs we have there, the more issues that can get discussed.

Share via Facebook and Twitter too. Hashtag during the event will be #CarersDebate

URGENT - CARERS DEBATE

What happens when you are ‘prepared to care’

14 June 2013

All this week there have been events round the country for Carers Week, details can be found here. It is a time when media also carry many articles , and the hope is that by raising awareness further afield, more people will identify themselves as carers and receive valuable advice, information and support. These can also be obtained from CarersUK  and Carers Trust

It is vital, especially in this economic climate, that carers and their families are armed with as much information as possible. Much which is needed to fight bureaucracy.

Benefits system  – may need support to navigate this system, for those we care for, as well as ourselves.

Carers Allowance – was totally ignored in the recent Welfare reforms.

Employment Support Allowance system is a nightmare when we have reams and reams of reports from drs/consultants but then we need PROVE again to DWP.

( see Carole’s story here )

Possible loss of Carers Allowance  as a result of the introduction of Personal Independence Payment  ( see here )

Government want carers to carry on working but the steps they are taking will result in opposite. Care criteria tightened to such a point that carers dont have a choice but to give work up.

Loss of independent living fund will result many disabled people losing independence and one of the avenues will be to return to family home which neither they or family want for a variety of reasons  ( see comment from Linda Burnip here)

Bedroom tax – many carers need extra room for a variety of reasons. Depending on ilness/disability some partners sleep in seperate rooms. Others have a lot of equipment to store. Family members can stay over to help with respite. Some children with disabilities are unable to share bedrooms with siblings.

Respite places are decreasing in numbers

………. and so the list goes on.

car crashThere are far too many changes/cuts, too fast and too deep. The brakes need applied as soon as possible before the crash happens and even more carers reach breaking point

Many individuals, groups, charities, academics have taken their grave concerns to the Coalition government, yet foolishly, time and time again, they are ignored.

If you are a carer, someone with an illness/disability, or someone not affected as yet (but you may be in the blink of an eye)  – sign this WOW petition here  – which calls on the government to carry out a Cumulative Impact Assessment of all these changes which are hitting many carers and their families several times over.

This government, and all parties, must stand by their duty of care to disabled people and their carers

Is the government prepared to take action? Carers Week report

14 June 2013

Carers Week logoWhen the invite came to attend a speed-networking event in Parliament with MPs I initially said no. Doing a return trip from the North East in same day is not ideal, early start and extremely late arrival home, all for a 2-hour event. However, I have always said that apart from our own MPs, those of us in the North East don’t get much opportunity to meet with other politicians, so I changed my mind and said ‘yes’.  I am now glad I did so, and appreciate the opportunity given by CarersUK and CarersWeek.

The train journey down started really well with an unexpected turn of events. A young man sat a few seats from me and I recognised him as Chris Ramsey, stand-up comedian and actor from South Shields. Those that know me will not be surprised at my next actions, which was to start tweeting him. As most people travelling were using phones, he was unaware who was relating to his twitter  followers what he was doing. Once I identified myself we spoke a little while. Talk about Big Brother is watching. Thanks for the laugh Chris, you were a good sport.

After this light relief it was over to Westminster for the event. I was met by Carers Week staff and introduced to others from various organisations, including Age UK and Carers Trust. Then it was to business.

As a Carers UK member my companions were Emily Holzhausen, Director of Policy, and Chloe Wright, Senior Policy Officer. They took turns to sit with me. Also helping oversee the event was Steve McIntosh.

It was explained how the event would unfold. As MPs arrived they would be guided to tables to speak with carers, how long for was unsure, depending on if they had any other appointments they needed to attend.

I had no worries about speed networking. Those that know Geordies will know we talk fast. My main concern was how much ground could be covered when the issues surrounding carers are many. It was not just about my family’s’ circumstances, but many others out there too, struggling to cope on a daily basis.

We managed to see 8 MPs, names as follows –

Carers Week blogIan Mearns  Lab
Guy Opperman  Con
Norman Lamb  LibDem
Peter Aldous  Con
Sheila Gilmore   Lab
Grahame Morris   Lab
Stewart Jackson  Con
Caroline Lucas   Green

As well as outlining how caring has impacted on my family, other issues discussed were as follows.

1.    The issue of the Children and Families Bill and the lack of parent carer rights in it, and the concern that they would be left behind. We also talked about when the Care Bill comes to the House of Commons, to stop carers from being charged for their own services and to put an amendment, which would prevent family and friends’ support being taken for, granted.

2.    We discussed the impact of welfare reform on carers, in particular the bedroom tax

3.    The benefits system, which causes huge difficulties in trying to juggle work and care.

4.    Lack of services that are right for the people we care for, e.g. lack of dementia services and support for younger people.

5.    Lack of investment locally in carers’ support e.g. carer’s dementia work.

6.    Concerns about cuts to services and reassessments of severely disabled people and the impact on the caring support and family

7.    Concerned about the cumulative impact of different changes and cuts that are hitting families hard.

8.    Problems surrounding Employment Support Allowance process

9.    Impact on disabled people, as well as carers, re closure of Independent Living Fund.

10.   Advice and information being hard to come by but being vital.

11.  Importance of strong local advocates within local carers’ organisations.

12.  The level of Carer’s Allowance and the failure of this Government and the last Government to reform this benefit.

With thanks to Ian Mearns, Grahame Morris and Guy Opperman for the North East presence, to Norman Lamb who stayed longer than intended and was late for his next appt, and remaining MPs for the interest they showed, and the many questions asked.

Journey back took several hours and it was past midnight when I got home, extremely tired but an enjoyable day.

So, following on from the Carers Week theme of ‘I’m Prepared to Care’ – my question would be – What next?

Many of us have already been caring for as long as we can remember. Governments past and present have failed to fully address many of the carer issues.

We need action now

Give us the tools to assist us in our caring roles. It may be finances, respite, services, equipment, understanding from employers etc. Investing in us now can only strengthen the foundation we provide that prop up both NHS and Social Services.

We are ‘prepared to care’ 

 Is the government prepared to take ACTION?

Rosemary

Carers UK blog

Carers Week – ‘Prepared to Care’

10 June 2013

Press release from Carers Week.

Report here

UK carers suffering due to lack of support

  • 75% were unprepared for caring role
  • 81% said they were not aware of the support available
  • 61% of carers have experienced depression
  • 92% of carers say they feel more stressed because of their caring role

Carers Week 2013 10th – 16th June- Prepared to Care?

New research from Carers Week of over 2,100 carers has revealed that carers are being woefully let down by a lack of support when they first take on a caring role. The findings from the report, Prepared to Care? show that support is not being made available to new carers with often devastating consequences.

Released to coincide with the launch of Carers Week 2013, the findings show that (more…)

WOW Petition – ***MASS TWEET – THURSDAY 6TH JUNE, 10.00AM, 1.00PM, 9.00PM***

5 June 2013

Copied from wow petition group

Hi all,

As you probably already know from twitter, facebook, or the blog, we’re organising a series of Mass Tweets for Thursday 6th June. We want to get WOW trending nationwide, to raise awareness of the campaign and get more signatures. You can help by tweeting using the #WOWpetition hashtag at 10.00am, 1.00pm and 9.00pm.

http://epetitions.direct.gov.uk/petitions/43154

CLICK HERE TO SIGN

Note that twitter calculates trending on the number of original tweets, not re-tweets, so we need as many people as possible to tweet as many tweets as they feel able (fewer than 100 in an hour though, or you’ll end up in ‘twitter jail’ for a few hours and unable to tweet till you’re released) at those times.

If you’d like to help before Thursday, we’d be most grateful if you can inform your friends about the tweetathon via twitter, facebook, email. This blogpost is great to give people further details,

SEE FULL DETAILS HERE   INCLUDING EXAMPLES OF TWEETS THAT YOU CAN USE.

To join discussion on all aspects of welfare, please see here too.

I want this to be the time of my life – not the end of it‏ – Angela’s story

3 June 2013

I’m Angela.

I’m 28 years old – but if they take away my social care it’ll be the end of my life.

I’m disabled but I want to enjoy life the way any other young woman can. Thanks to social care I have two volunteer jobs, I can go shopping, see my friends.

Angela MurrayNow they’re threatening to take this support away – leaving me isolated at home, forcing me to go to bed at 9.30 every night, not even able to go to the toilet.

George Osborne is about to decide how to spend our country’s money for the next two years. Will you join my petition and tell him to fund social care for all disabled people who need it?  We only have a few weeks!

Let me tell you a little more about me………………………

(more…)

Ellen Clifford talks to Real Fare on Welfare Reform and Protest

30 May 2013

Received from Disabled People Against Cuts

 

“The government have managed to get away with causing misery…and there hasn’t been an outcry because they’ve wrapped it up in all this language of reform”

 

read in full here


%d bloggers like this: