I’ve been engaged by Marie Curie to research the experiences of disabled people when they reach the end of their life – in other words, disabled people who had palliative care.
I’m looking to interview carers of disabled people who have sadly passed away.
These will be telephone interviews lasting no longer than 20 minutes. Total anonymity is guaranteed. The stories (good and bad) will be fed to Marie Curie who hope to publish a report in the Autumn which is likely to recommend change. The calls are completely unscripted and allow people an opportunity, in free flow, to talk about their loved ones’ experiences.
People are very welcome to email me at this address
You are also welcome to note that I have had personal experience of this issue.
Thanks so much.