Posts Tagged ‘green paper for social care’

End the care crisis: Dilnot must be a ‘turning point’

2 July 2011

End the care crisis: Dilnot must be a ‘turning point’

Care and Support Alliance


In advance of the publication of the Dilnot Commission’s recommendations on care and support funding, 25 members of the Care and Support Alliance – organisations representing older people, those living with disabilities and long-term conditions and their families – have set out the case for reform. In a joint statement they said:

“The publication of the Dilnot Commission’s recommendations must be a turning point in social care. We can no longer ignore the demographic reality of an ageing population and people living longer with illness and disability. Nor can we ignore a growing number of stories of abuse, neglect and unmet need from a chronically underfunded care system, which now faces further cuts. Successive Governments have kicked the question of long-term care into the long grass. This must not happen again, and the public will not forgive delay or half-measures.

The time is past for tinkering with a crumbling system, and urgent, fundamental reform is needed. A central part of that, and our bottom line for reform, must be additional public funding.

The current system is a postcode lottery of often high charges and poor quality services. Years of underfunding, compounded by cuts this year, mean that hundreds of thousands are going without vital support to eat, wash and live their everyday lives. If we want a care and support system raised to the standards we would all expect, then substantial additional funding cannot be avoided. Hard choices need to be made about who pays, but we cannot afford for decisions to be postponed as too costly or too controversial.

Unless you’ve been through the social care system it is difficult to understand how urgently it needs reform. If you need medical treatment, the NHS provides wherever you live. But different councils provide different levels of care services, and the state only pays for the care of people with the lowest levels of income or savings. If you have savings, income or a home worth more than £23,250, the costs of care in your own home or in residential care can be catastrophic.

The current system means that someone with dementia and their family could end up having to pay over £100,000 for the costs of care. Disabled people who want to live independently face a lifetime of huge bills to get basic support. Carers caring round the clock for loved-ones are forced to pay hundreds of pounds to get a few hours rest.

This is not simply a question of a societal duty to a small group of the vulnerable. Every family in this country will be affected by ageing, illness and disability. We all need a care and support system which protects families from catastrophic care costs, ends the postcode lottery in care and delivers fairness, dignity and independence.”

 Signed:                                          (more…)

Carers and Families are in it Together – Carers Week 2011

12 June 2011

This article comes from Carers in Hampshire a few years ago.

A carer is ……………

not paid
not chosen
not elected
not useless
not amateur
not ignorant
not incapable
not appointed
not uneducated
not unprofessional
not unable to think
not unable to speak
not lacking in skills
not in need of charity
not in need of a hair-do
not there to be patronised
not able to live a ‘normal life’
not always recognised by themselves
not free to do what they want when they want
not always treated well by statutory organisations
not always consulted by statutory and voluntary organisations
not always appreciated by the person they care for or by others
not always recognised by social, healthcare or voluntary workers
not accepted as capable by some social, health or voluntary workers
not respected / considered by some social, health and voluntary workers

Just because carers find themselves in a caring role, it does not mean (more…)

Mixed messages in the coalition’s plans for social care

27 May 2010

by Peter Beresford  

The new government’s hardliner welfare team strikes fear in mental health service users and disabled people

Our comment can be read below Peters’ article.

ILF Benefits Changes Hit Most Vulnerable People with Disabilities- tell your MP

24 May 2010

We were dismayed to learn of changes to the benefits system, which could hit those who need benefits the most.

The Independent Living Fund was designed to give people with disabilities better lives. Thousands of Scots with disabilities have used ILF to fund new lives in their own homes after decades of living in institutions. But, changes to the criteria mean that new applicants will only be eligible if they work more than 16 hours per week. Of the thousands who currently receive ILF- fewer than 10 would be eligible if they were to apply under the new rules. This is tantamount to scrapping the benefit altogether.

Read in full here

Care system’s last days

5 May 2010

While none of the big three parties have the answers, it is clear that massive change is ahead for the adult social care system.

Hopes that social care would be a big election issue seem to have faded. But it now looks even more likely that social care funding will be one of the big post-election problems that any new government will have to sort out. Worryingly, there still seem to be big questions for all major parties to answer about social care if they are to carry conviction


Read full article by Peter Beresford , professor of social work at Brunel University and chair of service user organisation Shaping Our Lives

Guest blog – Benefits and Work

28 April 2010

Carer Watch would like to thank Steve at Benefits and Work for inviting us to be a guest on their blog site.

The article we submitted can be read here . Please add your own comments too.

Campaign to protect Disability Benefits

8 November 2009

With the recent release of the Green Paper for Social Care, one of the proposals put forward is that …… “some elements of disability benefits, for example Attendance Allowance” might no longer be paid to people and instead integrated into a new social care budget. DLA is mentioned too.

We, at Carer Watch, are very concerned with this proposal, which would harm some of the most vulnerable people in our society. Whilst it is vital the consultations take place regarding the issues surrounding Social Care,we do not believe this option should even be included in the Green Paper.

The Princess Royal Trust for Carers and Crossroads Care

30 October 2009

Carer Watch have received the following answers to questions we asked of these groups.

Sorry for the delay in getting back to you with the answers to the questions. These are the answers from both charities and do come back to us with any questions.

1. Do you believe CA should be kept seperate from the main benefit system?

We believe that carers’ benefits should be raised, that more carers should be eligible for benefits and that more effort should be made to increase uptake of carers’ benefits. We also think that more should be done to help carers who wish to find and maintain work alongside smaller, more manageable caring roles and we would like to see more flexibility in the benefits system so that carers were not penalised when they take up part time work. When any proposals are made to change the benefit system that might affect carers, we consult with our networks of Carers’ Centres and Crossroads Care schemes to gain the opinions of carers and base our response on that. We have not canvassed opinion on the issue of whether CA should remain separate, but we know that any changes that risk lowering rather than raising carers’ benefits would be very unpopular with the hundreds of thousands of carers to whom we offer support.

2. What are your thoughts about the proposal that was deferred, of moving carers to a modified version of JSA?

We campaigned against that proposal which was part of the Department of Work & Pensions Green Paper July 08 – ‘No one written off’. We put our objections to the then Secretary of State James Purnell MP at a meeting with him just a few days before he announced that the proposals would be dropped from the White Paper published December 2008.

3. The govt has mentioned in the Green paper for Social Care that ‘some’ disability benefits ‘may’ move to local authorities to help fund care, Do you see this as a step forward or a negative move for those needing care, if such a proposal became a reality.

We have not finished our consultation with carers and our Networks on the Green Paper yet. We know that some Carers’ Centres and Crossroads Care schemes are still holding meetings with local carers. However, many carers have made their objections to these proposals known and we would include this in our official response to Government.

We do think that Attendance Allowance, for instance, offers the type of freedom and control that the Government is trying to encourage through personal budgets and we are concerned that the Attendance Allowance budget would not be moved to provide other kinds of early intervention and preventative support for those who do not meet high eligibility thresholds, but might instead disappear into councils’ budgets. We are also concerned that social care packages are lower if there is a carer, those pepole with carers would not receive an increase in social care support equivalent to what they had lost in AA value.

4. Do you believe that the option of funding social care in the future through General taxation should have been left on the table to ensure a true debate took place?.

Yes. The social care funding ‘gap’ is a fraction of the money spent on other policy areas, including the NHS. We recognise that in consultations the public have been keen on the idea of fully funded social care but reluctant to see taxes raised, but we would have preferred this option to have been fully part of the debate.

Joint Policy & Parliamentary Officer
The Princess Royal Trust for Carers and Crossroads Care

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