Posts Tagged ‘blindness’

A sunrise walk – living with chronic pain

4 June 2011

received from Pat Onions

Chronic pain is a disease for which there is often little sympathy. This is because many people don’t understand it. If you have a broken leg, your cast tells people that you must be in pain. However pain from a ‘bad back’ rarely gets as much sympathy. Chronic pain frequently carries a stigma, and a misconception of pain killer addictions.

Often misunderstood chronic pain is very real.

As someone who has recently broken her ankle I understand, all to well, pain. Fortunately for the pain and me it will heal go. I cannot begin to comprehend going to bed in pain and waking up still in pain. It rules your life where every waking moment and everything you do hurts you. Depression & pain are unwelcome bedfellows. When you cannot see any end to this hurt, it is called ‘chronic pain’.

 My husband, David, has suffered chronic pain for over 30 years and, yet, is prepared to walk 3 miles to raise money for other sufferers. To most people 3 miles would probably take little over an hour, the sort of distance you walk the dog. To David who cannot walk one step without extreme pain it will be his ‘Everest’.

On Thursday 23 rd June a ‘sunrise’ walk will be taking place at Arthur’s Seat in Edinburgh to raise money for Pain Concern.

Heather Wallace, chair of Pain Concern will head the walk. A chronic pain sufferer herself she will be joined by many other sufferers, their friends and families. Doctors, GP’s and people from the pharmaceutical industry are walking too. This will include the Chair of the ABPI Pain Scotland Group together with Bill Patton who is also participating.

I know they will all have their own ‘Everest’s’ to climb… mine will be to get David there for the 6.30 AM start!!!!

I shall walk with him every painful inch of his way. David, I am so proud of you.

Anyone wishing to donate can do it through  (see under the name of Heather Wallace)  

Does she take sugar syndrome ?

6 February 2011

Guest post received from Pat Onions –  a blind full time carer

I was in a shop this afternoon buying groceries and a lottery ticket. Trying to decide if it was Thursday or Friday, and pack shopping at the same time, the assistant commented… ” Must be lovely to be retired where it doesn’t matter what day it is”. “Oh I’m not retired…far too young” said I.  “That’s even better when you have enough money that you don’t have to work” came back her reply. I packed the shopping and left David to pay. David, normally the quiet one, said loudly…” My wife is blind”. From somewhere in the now lengthy queue came a retort…” She doesn’t look it.” David, turned his wheelchair and gave our standard reply,” and you don’t look stupid but looks are deceptive.”

Just another normal day in the Onions lives.

I am actually a very young (?) looking 58 year old but the way the Government keeps moving the retirement age I think I have a very long time to wait.

Society is as much to blame. The international symbol for disability is a person in a wheelchair. That is the stereotype of disabilities. I suppose I should have a guide dog, or long white cane and dark glasses. I don’t. We have 2 Border Collies whose walks are physio for David. I have a folding white symbol cane which sighted people have no idea what it is for. If I wear dark glasses I bump into everything instead of just most things.

I think the experts, and how we love them, tell us… (more…)

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