Archive for the ‘muscular dystrophy’ Category

UPDATE – Petition re respite places for disabled adults with life shortening conditions

1 November 2013

Received from Robert WatsonSIGN HIS PETITION HERE  and then share with your own contacts asking them to do the same.

Original details here

I would like to update on what has been happening with the adult respite campaign which I set up. My 38 Degrees petition still needs your support. Some significant progress has been made in terms of taking the petition to the Scottish Parliament, which will be the biggest milestone of the campaign so far. 

RobertWOne significant factor in helping get the petition to Parliament has been the involvement of the well known Scottish Labour MSP Jackie Baillie. Ms Baillie is already involved with the Muscular Dystrophy Campaign as she helps organise the Cross Party Group meetings on MD that are held at the Scottish Parliament every so often, and she already told me when I met her at an Action Duchenne lobby of parliament back in June that she was very willing to help support myself and all the other young adults with this campaign.  It was great that she showed her commitment to helping us by coming to one of the CHAS Young Adult Council meetings to chat with myself and other affected young adults about how we can take the campaign forward.

 

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Petition re respite places for disabled adults with life shortening conditions

18 May 2013

Received from Robert Watson. Please sign his petition and then share with your own family, friends, networks.

CarerWatch fully support Robert

 

Robert Watson

I just started the petition “Create respite facilities to support disabled adults with life-shortening conditions aged 21-45” and wanted to ask if you could add your name too.

This campaign means a lot to me and the more support we can get behind it, the better chance we have of succeeding. You can read more and sign the petition here:

http://you.38degrees.org.uk/petitions/create-respite-facilities-to-support-disabled-adults-with-life-shortening-conditions-aged-21-45

Thank you!

Robert

Muscular Dystrophy Campaign – National conference

13 October 2011

Received from  Muscular Dystrophy Campaign

**We are live streaming our 2011 National Conference online**

We hope to be able to meet as many of you as possible in person at our National Conference on Saturday but, for those of you who can’t make the trip to Nottingham we will be live streaming the event for free via our channel on uScreen:  click here

All you have to do on the day of the conference is visit our uScreen channel from 10am and the main speakers will be streamed live from the stage to the comfort of your living room, or wherever else you have your computer.

There are other digital ways you can get involved on the day too, like swinging by Facebook or following our tweets on the day. Please feel free to join in too; we will be tagging tweets #mdcnc

Facebook

Twitter

Warm regards,

David Pearce
Direct Marketing and Digital Manager

Major shake-up of adult social care in Lincolnshire is approved

5 October 2011

 

HUNDREDS of elderly and vulnerable people will have their home help removed as part of the biggest shake-up of adult social care in Lincolnshire for more than 60 years.

County councillors agreed yesterday to remove care allowances to people who need help with simple household tasks like cooking or cleaning.

Major shake-up of adult social care in Lincolnshire is approved | This is Lincolnshire

Proposal to replace Disability Living Allowance with Personal Independence Payment (16th September 2011)

22 September 2011

 

3.1 Carers UK is surprised and disappointed at the lack of adequate assessment of the impact of the PIP proposals on carers:

· There was no mention of carers in the initial Impact Assessment of the DLA reforms, published with the Bill; or in the Equality Impact Assessments published during the Committee stage. The Government’s response to the DLA reform consultation, published in April, simply states that the Government is considering the implications for Carer’s Allowance of DLA reform.

· This lack of upfront information not only makes adequate scrutiny of the proposals impossible – but it is also causing a huge amount of distress for families, including those affected by the most severe disability and terminal illness, who fear the loss of their disability and carers’ benefits because they do not know if they may be affected.

· Given that 73% of current Carer’s Allowance claimants are women, it is also concerning that the potential loss of independent income for a group predominantly made up of women was not a key part of the gender impact assessment for the Bill.

3.2 We believe that it is critical that a full evaluation of the impact on carers is conducted as a matter of urgency. This must include an estimate of the number of carers expected to lose Carer’s Allowance, a disability impact assessment and a carer equality impact assessment which looks at the impact on gender equality of the likely loss of Carer’s Allowance .

Proposal to replace Disability Living Allowance with Personal Independence Payment (16th September 2011)

An opportunity to raise YOUR voice to break the silence

21 September 2011

This is a joint venture between CarerWatch, The Broken of Britain, Disabled people Against Cuts and ACTnow

Everyone is urged to support this.

To all our members and supporters;

The Labour party conference starts in Liverpool on Saturday. As we all know, Labour were the architects of Employment Support Allowance and the ‘not fit for purpose’ Work Capability Assessment which is so stressful and traumatic it was linked to the suicide of claimants whilst Labour were still in power. The Labour party are the official party of opposition, but they are not opposing the Welfare Reform Bill as they should be and seem to have forgotten that the 10 million sick and or disabled people plus carers, friends and family in the UK have the power to vote. It is time for us to remind Labour that they will not get any of our votes if they do not start to oppose the parts of the Welfare Reform Bill set to return sick people, disabled people and carers to a life of desperation, dependency, despair and charity.

We are asking you to help with a mass email to the Labour party to remind them of our voting power. Please include the following details in your email and send it to Ed Miliband, Margaret Curran (shadow minister for disability) and Liam Byrne (shadow minister for DWP). If you have time please also email it to any Labour MP and particularly any members of the shadow cabinet. We have provided a list of email contacts below.

Please aim to send your email at 11am tomorrow (Thursday the 22nd September) If you can’t send the email at 11am, don’t worry, just please try to send it at any time between then and the end of Labour party conference on Wednesday 29th September.

The email subject should read “Your Silence Is Deafening”

We suggest embedding a link to this youtube video “The Sound of Silence” To embed the video into your email just copy and paste the link below.

http://www.youtube.com/watch?v=BvsX03LOMhI  

Then please copy the following text into your email;

Dear (insert name here)

‘The 10 million disabled people in this country plus their carers, relatives and friends are watching what your party do in relation to disability issues and wondering why you seem disinterested in trying to get their votes by opposing the savage attacks against disabled people being made by the Coalition government. During conference season we wish to remind you, the architects of Employment and Support Allowance to ‘never fall ill, never grow old, never become disabled, never become a carer’, for if you do, as we have found, not even Labour will speak up for you.’

If you would like to add a short, personal message explaining to Labour how you feel about their lack of support for sick, disabled people and carers then please include it after the suggested text. You might also like to include a photo of yourself, or perhaps a photo of what disability, sickness or caring means to you. Don’t worry if you don’t want to personalise the email, sending the suggested text is fine.

Contact details below

Ed Miliband MP, Leader of the Labour Party
House of Commons, London, SW1A 0AA
Tel: 020 7219 4778
ed.miliband.mp@parliament.uk
 
Shadow Secretary of State for Work & Pensions
Liam Byrne
House of Commons, London, SW1A 0AA
Tel: 020 7219 6953
Fax: 020 7219 1431
byrnel@parliament.uk
 
House of Commons, London, SW1A 0AA
Tel: 020 7219 8102
Fax: 020 7219 6656
margaret.curran.mp@parliament.uk
 
Shadow Home Secretary and Minister for Women and Equalities
Rt Hon Yvette Cooper MP
coopery@parliament.uk
 
Shadow Chief Secretary
Angela Eagle
eaglea@parliament.uk
 
Shadow Secretary of State for Business, Innovation & Skills
John Denham
denhamj@parliament.uk
 
Cabinet Office and Minister for the Olympics
Tessa Jowell
jowellt@parliament.uk
 
Shadow Secretary of State for Communities and Local Government
Caroline Flint
House of Commons, London, SW1A 0AA
Tel: 020 7219 4407
Fax: 020 7219 1277
caroline.flint.mp@parliament.uk
 
Shadow Secretary of State for Culture, Media & Sport
Ivan Lewis
House of Commons, London, SW1A 0AA
Tel: 020 7219 2609
lewisi@parliament.uk
 
Shadow Leader of the House of Commons 
Hilary Benn
House of Commons, London, SW1A 0AA
Tel: 020 7219 5770
hilary.benn.mp@parliament.uk
 
Shadow Secretary of State for Defence
Jim Murphy
House of Commons, London, SW1A 0AA
Tel: 020 7219 4615
Fax: 020 7219 5657
jimmurphymp@parliament.uk
 
Shadow Secretary of State for Environment, Food and Rural Affairs
Mary Creagh
House of Commons, London, SW1A 0AA
Tel: 020 7219 6984/020 7219 8766
Fax: 020 7219 4257
creaghm@parliament.uk
 
Shadow Secretary of State for Education and Election Coordinator
Andy Burnham
House of Commons, London, SW1A 0AA
Tel: 020 7219 8250
andy.burnham.mp@parliament.uk
 
Shadow Lord Chancellor, Secretary of State for Justice
Sadiq Khan
House of Commons, London, SW1A 0AA
Tel: 020 7219 6967
Fax: 020 7219 6477
sadiqkhanmp@parliament.uk
 
Shadow Secretary of State for Energy and Climate Change
Meg Hillier
House of Commons, London, SW1A 0AA
Tel: 020 7219 5325
Fax: 020 7219 8768
meghilliermp@parliament.uk
 
Shadow Secretary of State for Health
John Healey
 
House of Commons, London, SW1A 0AA
Tel: 020 7219 6359
Fax: 020 7219 2451
healeyj@parliament.uk
 
Shadow Secretary of State for Northern Ireland
Shaun Woodward
 
House of Commons, London, SW1A 0AA
Tel: 020 7219 2680
woodwardsh@parliament.uk
 
Shadow Secretary of State for Scotland
Ann McKechin
House of Commons, London, SW1A 0AA
Tel: 020 7219 8239
Fax: 020 7219 1770
ann.mckechin.mp@parliament.uk
Constituency
 
Shadow Secretary of State for Transport
Maria Eagle
House of Commons, London, SW1A 0AA
Tel: 020 7219 4019
Fax: 020 7219 1157
eaglem@parliament.uk
 
Shadow Secretary of State for Wales
Peter Hain
House of Commons, London, SW1A 0AA
Tel: 020 7219 3925
Fax: 020 7219 3816
hainp@parliament.uk
 
 
Steven Timms MP
timmss@parliament.uk
stephen@stephentimms.org.uk

Karen Buck MP

buckk@parliament.uk

Anger as Welfare Reform Bill debate ‘squirreled away’ from public scrutiny

14 September 2011

 

Peers agreed today to a Government plan to hold the committee stage of the controversial Welfare Reform Bill away from the main chamber of the House of Lords, despite strong opposition from Labour.
Government chief whip Baroness Anelay of St Johns argued that the next stage of the Bill should be debated in a committee room and peers accepted the plan by 263 votes to 211, majority 52.
Decisions on where committee stages are held are almost invariably taken in private between the parties, making today’s vote extremely unusual.
But today both sides blamed each other for the breakdown of negotiations.

Anger as Welfare Reform Bill debate ‘squirreled away’ from public scrutiny » Housing » 24dash.com

Welfare reform Bill – House of Lords –

14 September 2011

Tuesday 13th sept 2011 witnessed the 2nd reading of this Bill – House of Lords.

Transcript from Hansard can be found here

Also available on Theyworkforyou websiteannotations can be added on right hand side relating to each speech made.

23 references made to carersdetails here

Coalition government – a ‘machine’ made from steel

8 September 2011

For countless years, with successive governments, family carers have continuously raised their voices outlining the many problems they face, about resources, finances, respite and/or equipment.

Yet no matter how much they chipped away at the brick wall no real action has been taken, by past and present govts. Campaigns have followed one after the other from many individuals, groups, and charities.

We are currently witnessing the biggest shake up of welfare benefits in over 60 years and still the issues surrounding Carers Allowance are not being addressed.  It is the LOWEST of all benefits at £55.55  per week.

As campaigners we will not give up even though the brick wall is now made of re enforced steel. Behind that wall lies a Coalition machine made from cold steel too. It shows NO understanding, NO compassion. It operates so clinically, so precise and its actions prove that it has no heart.

It speaks of Responsibility, Big Society, yet continues on its mission to persecute many disabled people, their families, and carers, with this current Welfare Reform Bill.

Is this the future we want for ourselves, for our children?

A future where disabled people and their families are battered from all directions.

Borrowing the famous words from Winston Churchill and altering them slightly…

Never has so much been given so freely by so few, for the benefit of so many.

 Carers need action and they need it NOW

 Please contact any groups/charities you belong to. Tell them your concerns surrounding Welfare Reform.

Contact your MP . Add your postcode in the box on this link to find their details

Feel free to use this template from Sue Marsh of The Broken of Britain

Support the Hardest Hit campaign which following on from a successful march in May 2011 are now planning local protests.

One simple change re ESA

As individuals any action we take may seem so small, but collectively we can be stronger.

Time to take action across the UK | The Hardest Hit

19 August 2011

 

The Hardest Hit rally, march and lobby on 11th May was an outstanding success, bringing disabled people, their families and other campaign supporters together with one clear voice.

But further action is needed. So the Disability Benefits Consortium (DBC) and the UK Disabled People’s Council (UKDPC) are working together to support Hardest Hit events across the UK on and around 22nd October.

Despite having promised to protect the most vulnerable, the Government is pressing ahead with swingeing cuts to benefits and services vital to the lives of disabled people. It is simply not listening to us. These events will let us come together again, across the UK to send a clear message: stop these cuts.

Time to take action across the UK | The Hardest Hit


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