Archive for the ‘independent living fund’ Category

Sad news from DPAC

10 November 2016

It is with great sadness that we have to tell you one of our co-founders, Debbie Jolly has died following a short hospital stay. As disabled people everywhere we’ve lost a friend and advocate and a fighter for our movement.

Debbie has played a hugely influential part in the development of DPAC since 2010 and she and I have worked together virtually every day since dealing with the day-to-day things that needed to be done to make DPAC the successful campaign group we have become.

Read in full here

CarerWatch would like to extend our deepest sympathies to those that knew Debbie, both personally and through her campaigning work. RIP


#SaveILF Campaign Goes to Parliament, Tues 6th Jan (and online)

5 January 2015

Join us for a Mass Action to save the ILF, Tuesday, January 6th 1.30pm for 2pm start. House of Commons, SWIA 0AA


Join us Online. We have prepared a webpage with tweets on that you can use, or you can tweet your own messages to:

  • Tories:  @Mark_J_Harper, @David_Cameron, @EstherMcVeyMP, @JoJohnsonMP who closed the ILF (IDS is too much a coward to have a twitter account)
  • Labour: @Ed_Miliband, @KateGreenSU, @RachelReevesMP who have (so far) chosen not to save the Independent Living Fund


For full detail see DPAC website here



URGENT ACTION: #SaveILF judgement due Monday

5 December 2014

Received from Inclusion London. Please share with your networks.

URGENT ACTION: #SaveILF judgement due Monday!!!

10am – Monday 8th December 2014

As the future of disabled people’s right to independent living hangs in the balance, disabled people will not be beaten.


Join us to get the message out loud and clear: whatever the legal ruling, we will not be pushed back into the margins of society, we will not go back into the institutions, our place is in the community alongside our family and friends and neighbours and we are fighting to stay.


On 10am Monday 8th December the judgment in the most recent legal challenge against the closure of the Independent Living Fund will be passed down.


In November last year the Court of Appeal quashed the government’s decision to close the ILF with the Court of Appeal judges unanimous in their view that the closure of the fund would have an ‘inevitable and considerable adverse effect which the closure of the fund will have, particularly on those who will as a consequence lose the ability to live independently.”


In March this year the then Minister for Disabled People Mike Penning retook the decision and announced a new date of June 2015 for permanent closure of the Fund that provides essential support enabling disabled people with the highest support needs to live in the community when the alternative would be residential care.


In October a second legal challenge was heard in the high court brought by disabled claimants claiming that the Minister had not considered any new information to properly assess the practical effect of closure on the particular needs of ILF users. The Department for Work and Pensions mounted a defence based on their assertion that the Minister had adequate information to realise that the independent living of the majority of ILF users will be significantly impacted by the closure of the fund.


The closure of the ILF effectively signals the end of the right to independent living for disabled people in the UK. Whilst never perfect the ILF represents a model of support that has enabled thousands of disabled people to enjoy meaningfully lives and to contribute to society as equal citizens. The closure of the Fund to new applicants in December 2010 has resulted in disabled people trapped indoors without their basic needs being met, treated worse that animals and if they complain to their local authorities about needing more support, threatened with residential care.


The fight to #SaveILF is part of a much wider fight for social justice for all disabled people.


Whatever happens on Monday disabled people are not going away. We will be in the faces of government until our rights to live as equal citizens in society is recognised and valued.


What you can do:

Come down to the high court. The court have said there will be no hearing. We say we will be there anyway to find out the judgment together in solidarity. We are asking all supporters who can to get down to the high court on Monday and join us. If travel costs are the only thing holding you back let us know.


Organise your own #SaveILF vigil outside your town hall and invite your local politicians and press along. More and more councils are coming out and saying that if the ILF closes and funding is devolved to local authorities that they will ringfence for existing ILF recipients any money they are given from central government as part of the closure. This will mitigate against the loss of independent living for those individuals which is an inevitable consequence of the government proposals. If your council has come out and committed to ring fence then use this as a chance to congratulate them – if they haven’t as a chance to mount pressure.


Get involved on-line and through social media to get the message out loud and clear: disabled people are not going away until we have reclaimed our rights.

Best wishes,

Ellen Clifford                                                        

Campaigns and Communications Officer

Inclusion London


336 Brixton Road, London, SW9 7AA

Tel: 020 7237 3181, office SMS: 0771 839 4687   

Independent Living fund Drop in tomorrow – House of Commons

1 September 2014
Independent Living fund Drop in
– with BBC Silent Witness actress Liz Carr
2 September 2014; 2 – 4pm; House of Commons Committee Room 19

pic from BBC

This drop in session will be a chance for MPs to find out more about the closure of the ILF which currently supports nearly 18,000 disabled people with the highest support needs to live independently in the community, to contribute to society in employment, education, volunteering, as family members, friends and as members of our communities and to build the local economy through employing teams of Personal Assistants.

The surgery will be an opportunity to ask questions and to speak to Liz who has been enabled, through support from the ILF, to progress an acting career that has spanned stand-up comedy, presenting for BBC and primetime television.

Also in attendance to answer your questions will be an ILF staff representative and a disabled person who missed out on the ILF through its closure to new applicants in 2010 and whose experiences reflect those of many other disabled people now excluded from participating in areas of life that non-disabled people take for granted.

The Drop in is being organized by PCS Union, Disabled People Against Cuts and Inclusion London.

For more information contact or


Lords grand Committee – Debate on Independent Living Fund

26 March 2014

Details: Upcoming Business – Lords: Grand Committee (31 Mar 2014) 
Independent Living Fund – Baroness Campbell of Surbiton. *Short Debate*

There will be a short debate on ILF on Mon 31st March – it is really important that as many ILF users and supporters are there as possible.


You can also watch live on the day here – 


Baroness Campbell of Surbiton   

to ask Her Majesty’s Government what arrangements they are putting in place to ensure that disabled people currently in receipt of money from the Independent Living Fund will not be left in hardship when the Fund is wound up next year and the responsibility for Fund recipients is handed to local authorities. (1 hour) 

Further details and testimonies can be found on DPAC website here . You can contact them here

Independent Living Fund judgement – November 6th 2013

5 November 2013

Received from Inclusion London

   inclusion london logo - black                                             
Independent Living Fund  – the Judgment
November 6th 2013 – 9.45am
Outside front entrance Royal Courts of Justice, the Strand, London, WC2A 2LL
The Court of Appeal judgment in the legal challenge taken by disabled people against the Department for Work and Pension’s plans to close the Independent Living Fund (ILF) will be handed down tomorrow in a short hearing at the Royal Courts of Justice.
The closure of the ILF signals the end of disabled people’s right to independent living and has been described by commentators as “a nasty cut” because of the enormous devastating impact it will have on the lives of people with highest levels of support need.
The ILF was set up in 1988 to support disabled people to live in the community. Since then it has helped thousands in all areas of the country to live active and full lives.
The Government’s consultation on the future of the ILF was done in bad faith. It talked about integration with mainstream adult social care and presented the closure as a reform rather than a cut but the local authority social care system is not geared up to support independent living for disabled people. (more…)


11 October 2013

Received from DPAC


Monday October 14th 2013

Supporters will gather outside the courts at 9.45am and then try to get into the court room. By lunch time we will know if the appeal has been granted, in which case it will be heard over the Monday and Tuesday 15th, or if it has been turned down. Whatever the decision we will hold our vigil and press call at 12.30pm outside the courts in support of the claimants and in defence of the ILF.

Vigil and press call – from 12.30pm – outside front entrance Royal Courts of Justice, the Strand, London , WC2A 2LL

Join us in support of disabled claimants challenging the government’s consultation on the closure of (more…)

*Reclaiming Our Futures* – Week of Action

13 August 2013

Received from –

Disabled People Against Cuts,

Black Triangle,

Mental Health Resistance Network

and the WOW petition bring you:

*Reclaiming Our Futures*

Join this year’s week of action to protest against austerity, fight for our rights and celebrate disabled people


Our rights are being stripped away day by day, by the neo-liberal policies being imposed on us all by the Condems, leaving us without much hope for our futures – or our children’s.
We have been here before. Our history is littered with examples of how our community has come together when under attack to fight – and win. From the early campaigns of NLBDP (National League of Blind and Disabled People) through to the founding and manifesto of UPIAS (Union of the Physically Impaired Against Segregation) and on to DAN (Direct Action Network)- Now we have DPAC leading direct action and a host of other key grass root campaigns working towards reclaiming our rights and futures.

We have fought our corner over 3 centuries. And those fights have brought victories; the Independent Living Movement, our early CILs (Centres for Independent Living) and early active DPO’s (Disabled Peoples Organisations) and the significant rights for disabled people (which are now under attack).  They represent big victories, brought about by mobilizing in our communities around our common cause – and having the will and determination to see our demands met without compromising our rights. We have consistently united in anger and celebration.

DPAC Reclaiming our Futures Action

This Autumn, we are asking our community to come together in anger, and celebration again – and to unite around our demands.

We will be launching the UK Disabled People’s Manifesto setting out our vision of how the resources, structures and institutions of our society today can be re-designed to empower disabled people to take part in life on our terms. Disabled people are, and always will be, the experts on our lives and our self-determination. It will be a vision and practical plan that we can take forward in our communities, workplaces and lives to reclaim our futures.

In the build up to the manifesto launch, DPAC is (more…)

Update on Independent Living Fund campaign

30 May 2013

Received from Inclusion London :-

Hi all,

1)   Below is an update from the solicitors:

The five clients represented by Deighton Pierce Glynn and Scott-Moncrieff & Associates filed papers in the Court of Appeal on 14 May 2013 to start the process of appealing the decision by the judge in the ILF judicial review.  The first stage is for a single judge to consider the application for permission to appeal; this usually takes six to eight weeks.  If this is refused, there is sometimes the possibility to re-apply for permission at an oral hearing.  If permission is granted, sometimes it is only granted on some of the grounds argued.

The legal arguments raised by the clients are that the judge did not explain his ruling properly, there was no evidence the minister had met the public sector equality duty and no evidence that the consultation had been open and candid, as required by law.  The appeal also argues that the judge was wrong to rely on the White Paper (the proposed social care bill) becoming law, as part of his reasoning.  The appeal is limited to what was wrong legally with the judgment in the judicial review; it cannot bring in new evidence or new legal arguments.

If permission is granted, on any or all of the grounds, the court has been asked to have the appeal hearing itself by the end of October 2013.  The judge should have decided whether to give the clients permission to appeal by mid-July and at the same time have decided how quickly the case will be heard; another update will be provided after that.”

2)   Inclusion London and DPAC have been contacted back by Anne McGuire and the Association of Directors of Adult Social Services for meetings following our letters

3)   Questions were asked within the House of Lords about future funding for ILF users and the response was that nothing is known until the spending review:

4)   Kate has done some more filming and we are planning a film screening to highlight the impact of the closure of the ILF on 25th June, the eve of the spending review, in partnership with Shape Arts with performances from Sophie and Penny. We have no budget for travel but if any member of this group would like to attend please let me know as places will need to be reserved.

5)   The Care Bill has begun its journey through Parliament. This is very relevant for the ILF. The All Party Parliamentary Groups on Local Government and Disability published their report last week from their joint inquiry into social care (Promoting Independence, Preventing Crisis). Lords like Jane Campbell think this has great potential ( but without funding for social care campaigners don’t see how it can be. The Inclusion London Policy and Campaigns Forum have asked for Inclusion London to work on a campaigns strategy around the care Bill and for us to set up a meeting with Lords about it.

6)   We have put out a call out for information and evidence to show how the closure of the ILF to new applicants has already impacted on disabled people. I think this is going to be really important when making our arguments for the above. If anyone has information to share on this please get in touch.

Best wishes,
Ellen Clifford

Campaigns and Communications Officer
Inclusion London




Unable to apply for Independent Living Fund – Barry and Natassia’s stories

13 March 2013

After a long wait the day for the court hearing re Independent Living Fund is now here. Full details about the hearing and vigil can be found here.

There will also be an interview shown on Ch4 news at 7pm March 13th.

Please show your support throughout the afternoon by sharing these details as wide as possible. A few attending will hopefully be tweeting using hashtag  #ILF

I am Barry McDonald, I am 28 years old. I am a wheelchair user. I enjoy watching football and going out to the pub with my friends. I do a lot of volunteering around sports and improving services for Deaf and disabled people. I am ambitious as I have life goals I want to achieve: to be in a long term paid job, to move out on my own and to be in a position where I can be actively involved in doing all I can to improve services provided for disabled people and working towards a world that can one day be fully accessible for all.

I can’t do these things on the level of support I get from my local authority. I receive 45 minutes of social care per day for personal care. I receive nothing for domestic, social or leisure activities because my local authority will only fund support for basic personal care needs.

As a young person the hardest thing I find is not being able to (more…)

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