Archive for the ‘carers week’ Category

What happens when you are ‘prepared to care’

14 June 2013

All this week there have been events round the country for Carers Week, details can be found here. It is a time when media also carry many articles , and the hope is that by raising awareness further afield, more people will identify themselves as carers and receive valuable advice, information and support. These can also be obtained from CarersUK  and Carers Trust

It is vital, especially in this economic climate, that carers and their families are armed with as much information as possible. Much which is needed to fight bureaucracy.

Benefits system  – may need support to navigate this system, for those we care for, as well as ourselves.

Carers Allowance – was totally ignored in the recent Welfare reforms.

Employment Support Allowance system is a nightmare when we have reams and reams of reports from drs/consultants but then we need PROVE again to DWP.

( see Carole’s story here )

Possible loss of Carers Allowance  as a result of the introduction of Personal Independence Payment  ( see here )

Government want carers to carry on working but the steps they are taking will result in opposite. Care criteria tightened to such a point that carers dont have a choice but to give work up.

Loss of independent living fund will result many disabled people losing independence and one of the avenues will be to return to family home which neither they or family want for a variety of reasons  ( see comment from Linda Burnip here)

Bedroom tax – many carers need extra room for a variety of reasons. Depending on ilness/disability some partners sleep in seperate rooms. Others have a lot of equipment to store. Family members can stay over to help with respite. Some children with disabilities are unable to share bedrooms with siblings.

Respite places are decreasing in numbers

………. and so the list goes on.

car crashThere are far too many changes/cuts, too fast and too deep. The brakes need applied as soon as possible before the crash happens and even more carers reach breaking point

Many individuals, groups, charities, academics have taken their grave concerns to the Coalition government, yet foolishly, time and time again, they are ignored.

If you are a carer, someone with an illness/disability, or someone not affected as yet (but you may be in the blink of an eye)  – sign this WOW petition here  – which calls on the government to carry out a Cumulative Impact Assessment of all these changes which are hitting many carers and their families several times over.

This government, and all parties, must stand by their duty of care to disabled people and their carers

Is the government prepared to take action? Carers Week report

14 June 2013

Carers Week logoWhen the invite came to attend a speed-networking event in Parliament with MPs I initially said no. Doing a return trip from the North East in same day is not ideal, early start and extremely late arrival home, all for a 2-hour event. However, I have always said that apart from our own MPs, those of us in the North East don’t get much opportunity to meet with other politicians, so I changed my mind and said ‘yes’.  I am now glad I did so, and appreciate the opportunity given by CarersUK and CarersWeek.

The train journey down started really well with an unexpected turn of events. A young man sat a few seats from me and I recognised him as Chris Ramsey, stand-up comedian and actor from South Shields. Those that know me will not be surprised at my next actions, which was to start tweeting him. As most people travelling were using phones, he was unaware who was relating to his twitter  followers what he was doing. Once I identified myself we spoke a little while. Talk about Big Brother is watching. Thanks for the laugh Chris, you were a good sport.

After this light relief it was over to Westminster for the event. I was met by Carers Week staff and introduced to others from various organisations, including Age UK and Carers Trust. Then it was to business.

As a Carers UK member my companions were Emily Holzhausen, Director of Policy, and Chloe Wright, Senior Policy Officer. They took turns to sit with me. Also helping oversee the event was Steve McIntosh.

It was explained how the event would unfold. As MPs arrived they would be guided to tables to speak with carers, how long for was unsure, depending on if they had any other appointments they needed to attend.

I had no worries about speed networking. Those that know Geordies will know we talk fast. My main concern was how much ground could be covered when the issues surrounding carers are many. It was not just about my family’s’ circumstances, but many others out there too, struggling to cope on a daily basis.

We managed to see 8 MPs, names as follows –

Carers Week blogIan Mearns  Lab
Guy Opperman  Con
Norman Lamb  LibDem
Peter Aldous  Con
Sheila Gilmore   Lab
Grahame Morris   Lab
Stewart Jackson  Con
Caroline Lucas   Green

As well as outlining how caring has impacted on my family, other issues discussed were as follows.

1.    The issue of the Children and Families Bill and the lack of parent carer rights in it, and the concern that they would be left behind. We also talked about when the Care Bill comes to the House of Commons, to stop carers from being charged for their own services and to put an amendment, which would prevent family and friends’ support being taken for, granted.

2.    We discussed the impact of welfare reform on carers, in particular the bedroom tax

3.    The benefits system, which causes huge difficulties in trying to juggle work and care.

4.    Lack of services that are right for the people we care for, e.g. lack of dementia services and support for younger people.

5.    Lack of investment locally in carers’ support e.g. carer’s dementia work.

6.    Concerns about cuts to services and reassessments of severely disabled people and the impact on the caring support and family

7.    Concerned about the cumulative impact of different changes and cuts that are hitting families hard.

8.    Problems surrounding Employment Support Allowance process

9.    Impact on disabled people, as well as carers, re closure of Independent Living Fund.

10.   Advice and information being hard to come by but being vital.

11.  Importance of strong local advocates within local carers’ organisations.

12.  The level of Carer’s Allowance and the failure of this Government and the last Government to reform this benefit.

With thanks to Ian Mearns, Grahame Morris and Guy Opperman for the North East presence, to Norman Lamb who stayed longer than intended and was late for his next appt, and remaining MPs for the interest they showed, and the many questions asked.

Journey back took several hours and it was past midnight when I got home, extremely tired but an enjoyable day.

So, following on from the Carers Week theme of ‘I’m Prepared to Care’ – my question would be – What next?

Many of us have already been caring for as long as we can remember. Governments past and present have failed to fully address many of the carer issues.

We need action now

Give us the tools to assist us in our caring roles. It may be finances, respite, services, equipment, understanding from employers etc. Investing in us now can only strengthen the foundation we provide that prop up both NHS and Social Services.

We are ‘prepared to care’ 

 Is the government prepared to take ACTION?

Rosemary

Carers UK blog


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