Archive for the ‘adult care’ Category

Sad news from DPAC

10 November 2016

It is with great sadness that we have to tell you one of our co-founders, Debbie Jolly has died following a short hospital stay. As disabled people everywhere we’ve lost a friend and advocate and a fighter for our movement.

Debbie has played a hugely influential part in the development of DPAC since 2010 and she and I have worked together virtually every day since dealing with the day-to-day things that needed to be done to make DPAC the successful campaign group we have become.

Read in full here

CarerWatch would like to extend our deepest sympathies to those that knew Debbie, both personally and through her campaigning work. RIP

 

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Councils charging for support puts #carers wellbeing at risk

16 September 2015

From time to time, every carer needs support to help them look after the person they are caring for.

Sometimes that will mean getting equipment installed in their home so that they can meet the needs of the person they support. Other times it might mean calling in home help so that they can keep up with their housework.

pound signs

The importance of these services cannot be overstated. They mean that carers can provide the best support possible to their friend or family member whilst maintaining their own health.

read in full from CarersTrust

Short report can be read here     Full report here

 

 

 

 

#SaveILF Campaign Goes to Parliament, Tues 6th Jan (and online)

5 January 2015

Join us for a Mass Action to save the ILF, Tuesday, January 6th 1.30pm for 2pm start. House of Commons, SWIA 0AA

OR

Join us Online. We have prepared a webpage with tweets on that you can use, or you can tweet your own messages to:

  • Tories:  @Mark_J_Harper, @David_Cameron, @EstherMcVeyMP, @JoJohnsonMP who closed the ILF (IDS is too much a coward to have a twitter account)
  • Labour: @Ed_Miliband, @KateGreenSU, @RachelReevesMP who have (so far) chosen not to save the Independent Living Fund

 

For full detail see DPAC website here

 

 

Carers and General Election 2015

15 September 2014

question markAre you an unpaid family carer? 

Are you worried about cuts to benefits and social care?  Have you been affected by lack of respite? …… and so the list goes on.

We are compiling a list of questions to be sent to Ministers from ALL main political parties. Any responses will be posted on this blog.

Please add your question in the comments below or send email to Rosemary at admin@carerwatch.com

Please share with your networks

***************

What others are saying  –

 

from Richard Hawkes  Chair of Care and Support Alliance

In the last few months we’ve heard again from local authorities about the chronic underfunding in the social care system.  Figures from ADASS show that there has been a 26% reduction in social care budgets over the last four years.

As a result, we are seeing a rapidly rising number of older and disabled people who struggle to get the support they need to simply get up, get dressed and get out of the house.

This is placing unbearable pressure on family carers, who are simply unable to fill the gap left by care cuts. The number of people providing full-time care to loved ones is now over 1.4 million, many of who are being pushed to breaking point.

The new Care Act is bold and ambitious.  But delivering on it is dependent on putting the social care system on a sustainable financial footing.We need all political parties to be bold and commit to investing in social care, so that older people, disabled people and the families who care for them get the support they need to live well.

*****

 from Moira Fraser, Director of Policy and Research, Carers Trust

The General Election in 2015 is a crucial opportunity for carers’ voices to be heard. So many issues have impacted on carers in the last four year – changes to the NHS, in welfare benefits and cuts to the services available locally.

Carers votes count. Carers should be able to access adequate support to ensure they and the people they care for are well supported, healthy, and have a  life of their own.

All political parties should make it a priority to recognise the needs of carers. Making sure the rights won under the Care Act in England are properly implemented, including providing the funding to do this, would be a good place to start.

****

from Heléna Herklots, Chief Executive of Carers UK

Just as more and more families take on caring responsibilities, carers are facing a combination of cuts to social care and benefits. As we approach a general election, all political parties must pledge to stop cutting carers support and urgently put in place measures to prevent carers’ financial hardship and ensure social care services can meet growing demand.

Without this we will see growing numbers of families pushed to breaking point, forced to give up their jobs to care and at risk of debt, isolation and exhaustion.

 

 

 

 

Do you have experience of Palliative Care services?

10 July 2014

I’ve been engaged by Marie Curie to research the experiences of disabled people when they reach the end of their life – in other words, disabled people who had palliative care.

I’m looking to interview carers of disabled people who have sadly passed away.

Marie curie

 

These will be telephone interviews lasting no longer than 20 minutes. Total anonymity is guaranteed.  The stories (good and bad) will be fed to Marie Curie who hope to publish a report in the Autumn which is likely to recommend change.  The calls are completely unscripted and allow people an opportunity, in free flow, to talk about their loved ones’ experiences.

People are very welcome to email me at this address

mark.shrimpton@disabilitysolutionsworldwide.com

You are also welcome to note that I have had personal experience of this issue.

Thanks so much.

Mark Shrimpton.

 

..

Carer issues judicial review proceedings against Iain Duncan Smith

14 June 2014

A disabled grandmother and her granddaughter who provides full time care for her have this week issued judicial review proceedings in the High Court against the Secretary of State for Work and Pensions, Iain Duncan Smith, challenging the inclusion of Carer’s Allowance in the ‘benefit cap.’  The benefit cap policy has been in force across the country since September 2013.

The government has already conceded that the cap had unintended consequences for victims of domestic violence living in women’s refuges, and after the families case was heard in the Court of Appeal, Ian Duncan Smith with no fanfare amended the regulations to remove women’s refuges from the cap.

The proceedings issued this week highlight another consequence of the cap, which may surprise those who consider that the cap achieves fairness. Included in the group of families who are capped are those who receive Carer’s Allowance. To qualify for Carer’s Allowance the benefit claimant has to be providing upwards of 35 hours a week care to a severely disabled person. This means that anyone receiving Carer’s Allowance is by definition not available to work, because they must be providing care.

read in full here

3.      The judicial review challenges Part 8A of the Housing Benefit Regulations 2006, which was inserted by the Benefit Cap (Housing Benefit) Regulations 2012, SI 2012/2994, pursuant to section 96 of the Welfare Reform Act 2012.  The claimants argue that the Regulations are discriminatory and unreasonable.  They also argue that the Secretary of State did not take proper account of the impact of the policy on carers and those they care for, and is irrational.

 

 

Social care sector leaders urged to change direction on personal budgets

9 April 2014

A group of academics, activists and practitioners are writing this week to all directors of social services and other sector leaders to draw their attention to recently published evidence in relation to the current strategy of delivering personal budgets through self-directed support (SDS). The evidence shows the strategy to have comprehensively failed against all the key measures it set for itself.

read in full here

 

 

Blue badges and Pip, Fraud, and also Care for adults

17 March 2014

Upcoming business
Wednesday, 26 March 2014

 

Lords: Main Chamber

Access to blue badges for vehicles following the introduction of the Personal Independence Payment – Lord Touhig Oral Questions

Commons: Select Committees

Work and Pensions: Fraud and error in the benefits system

9:30 am   Witnesses: Private sector companies and electronic payment system operators

Public Accounts: Care for adults in England

2:15 pm  Witnesses: Sandie Keene, President of the Association of Directors of Adult Social Services and Director of Adult Social Care Services, Leeds City Council and Emily Holzhausen, Director of Policy and Public Affairs, Carers UK; Sir Bob Kerslake, Permanent Secretary, Department for Communities and Local Government and Jon Rouse, Director General, Social Care, Local Government and Care Partnerships, Department of Health

 

 

 

UPDATE – Petition re respite places for disabled adults with life shortening conditions

1 November 2013

Received from Robert WatsonSIGN HIS PETITION HERE  and then share with your own contacts asking them to do the same.

Original details here

I would like to update on what has been happening with the adult respite campaign which I set up. My 38 Degrees petition still needs your support. Some significant progress has been made in terms of taking the petition to the Scottish Parliament, which will be the biggest milestone of the campaign so far. 

RobertWOne significant factor in helping get the petition to Parliament has been the involvement of the well known Scottish Labour MSP Jackie Baillie. Ms Baillie is already involved with the Muscular Dystrophy Campaign as she helps organise the Cross Party Group meetings on MD that are held at the Scottish Parliament every so often, and she already told me when I met her at an Action Duchenne lobby of parliament back in June that she was very willing to help support myself and all the other young adults with this campaign.  It was great that she showed her commitment to helping us by coming to one of the CHAS Young Adult Council meetings to chat with myself and other affected young adults about how we can take the campaign forward.

 

(more…)

Mental Health Legislation petition – Scotland

7 October 2013

Received from Autism Rights

A petition has been lodged with the Petitions Committee of the Scottish
Parliament, requesting that Scotland’s Mental Health Act be made compatible
with the European Convention on Human Rights:-

http://www.scottish.parliament.uk/GettingInvolved/Petitions/mentalhealthlegislation

Please support this petition by signing online and pass on to your other
contacts and any other organisations you are associated with.

 

 

 


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