Caring for a loved one with dementia can be a lonely, stressful experience. The feeling of disconnection is hardest to bear.
There may be precious moments of clarity, when memories return and the years roll away, but for the most part carers have to watch their loved ones drifting slowly away.
So many carers are in desperate need of respite, but opportunities to be relieved of the caring role for even a short time are few and far between. Over a third of carers have never been able to take a break since they started caring.