Motor Neurone Disease – Findlay story updated

An update to this article  regarding the Findlay family and their quest to improve the palliative care system for other familys’.

Helen recently emailed Carer Watch :

I’ve attached a copy of a newsletter to this email produced by the NHS National End of Life Care Strategy Team that’s just come out today. I did an interview with the editor focussing on the communications problems with my father’s care and it’s featured on page 7 of the newsletter – I thought you would be interested to see it. Our Findlay Report is still going out – I recently sent a copy to a hospice in Limerick, south west Ireland to someone who works on user involvement projects there and who I met at the conference in Bangladesh; also to a social worker at a hospice in Hartlepool who has passed it on to a lecturer in health and social care at Teeside University with a view to using it as part of the courses being run for students there. Five years since my father died and it’s all still relevant so we’ll keep going with it.

 EoLC newsletter-pg7-Feb2011

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