Carers desperate that respite could be taken away

DESPERATE carers who look after disabled children are devastated their only respite could be cruelly snatched away.

Tanya Cook cares for her 16-year-old son Jack who has a condition called tuberous sclerosis.

This means he has tumours in his brain, heart, eyes, and kidneys, as well as uncontrolled epilepsy and autism.

She has to help dress, shower and toilet him, as well as checking on him throughout the night because he frequently has seizures.

Herself unwell, the Quedgeley mum is “so exhausted” that she relies on The Meadows, in Dudbridge, Stroud, a home where Jack stays one night a week, to give her one night of rest each week.

But the centre, which is run by charity Action for Children, is at risk of closure and the news has put Tanya at breaking point.

“It’s just so wearing,” she said.

“It’s like having a big toddler. My brother had him for a day and asked me how I cope.

“The fact is we won’t be able to survive if we’re asked to care for our children 24/7 without a break.

“It will finish me.”

read in full here

Advertisements

3 Responses to “Carers desperate that respite could be taken away”

  1. ians12 Says:

    Cameron never did any real caring when he had a disabled son, he and his wife had hired nurses and others to do all the donkey work. Those with loads of money live in a different world. Don’t expect any sympathy from Cam/Clegg and Co.

  2. Tweets that mention Carers desperate that respite could be taken away « Carer Watch's Blog -- Topsy.com Says:

    […] This post was mentioned on Twitter by philippa codd and ♡ Heidi ♡, Rosemary. Rosemary said: #carers #disabled #cuts #carecrisis Carers desperate that respite could be taken away: http://wp.me/pHmFD-pK […]

  3. Cheryl Says:

    Cameron and co unload the responsability onto the LA, nothing to do with government!!! Nope government are far to busy filling in their expense forms.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s


%d bloggers like this: