Muscular Dystrophy Campaign – National conference

Received from  Muscular Dystrophy Campaign

**We are live streaming our 2011 National Conference online**

We hope to be able to meet as many of you as possible in person at our National Conference on Saturday but, for those of you who can’t make the trip to Nottingham we will be live streaming the event for free via our channel on uScreen:  click here

All you have to do on the day of the conference is visit our uScreen channel from 10am and the main speakers will be streamed live from the stage to the comfort of your living room, or wherever else you have your computer.

There are other digital ways you can get involved on the day too, like swinging by Facebook or following our tweets on the day. Please feel free to join in too; we will be tagging tweets #mdcnc

Facebook

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Warm regards,

David Pearce
Direct Marketing and Digital Manager

DBC launches report into Welfare Reform Bill

Carer Watch members support this protest and some are making plans to attend

A report published today by the Disability Benefits Consortium a coalition of 41 charities and organisations shows how welfare reform changes may harm disabled people.

The report Benefiting disabled people? highlights concerns over the impact of reforms to vital benefits like Employment and Support Allowance (ESA) and Disability Living Allowance (DLA) on thousands of disabled people and their families.

The report, presents the findings of recent surveys. The Disability Benefits Consortium surveyed 6,000 disabled people and found that:

Petition the Minister for Disabled People to Recall the Public Consultation on DLA Reform

Have you supported this petition by The Broken Of Britain. Only one more week remaining.

We, the undersigned, urge the Minister for Disabled People to recall the Public Consultation on Disability Living Allowance (DLA) reform, and to cease work on reform of this benefit, due to serious flaws in the consultation paper. As such, the consultation questions are deeply skewed and any answers will be likely to support wholesale reform. This is both unfair and unwise, and will cause hardship for many disabled people.

Full details here

CampaignsMD launch new blog – 14-Oct-2010

This is a new blog  written by the members of Muscular Dystrophy Campaigns’ Policy and Campaigns team.

We’ll be using this blog as a diary for the work that we’re doing to  highlight the problems faced by individuals and families living with muscle disease – gaps in care; the ‘postcode lottery’; financial hardship; early deaths.

Together we can improve the quality of life and boost independence for people living with muscle disease.

Please get in touch and leave your comments!

Telephone: 020 7803 4847
Email: campaigns@muscular-dystrophy.org
Twitter: CampaignsMD
Web: www.muscular-dystrophy.org

Muscular Dystrophy Campaign – TalkMD

Muscular Dystrophy Campaign   have launched a new support forum.

Details to register can be found here

Muscular Dystrophy Campaign

Muscular dystrophy and related muscle diseases cause muscles to waste and weaken. More than 70,000 babies, children and adults in the UK are affected.

Read here

2010 national patient survey on living with muscle disease

Campaigns